EVENTS //

Our Focus is Education & Research of Children's Genetic Diseases of the Brain

MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.

MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain

Upcoming Events

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Virtual 2022 "Sweetness and Laughter" Gala

Please join us for the highly entertaining and uplifting Virtual 2022 "Sweetness and Laughter" Gala and "See the Light" Awards.
When: Wednesday April 27, 2022 at 7:00 pm
Highlights:
  • Sweetness and Laugher Entertainment:
    • Bob Costas: 29 Emmy Award Winner will share his Wit and Wisdom
    • Premier Virtual Magic Show according to over 100 major companies
  • See the Light Awards and MFRF Progress Review

Past Events

Curing the 2020 Bitterness and Sadness with
“Sweetness and Laughter”
Virtual Gala Mini-Series

Our first-ever virtual gala mini-series was a success! While we could not be physically together, to see more than 300 smiling faces and participants on Zoom this year was a wonderful alternative. We shared updates in research and treatments, genetic screening, nursing student education, and more! Click the link below to learn more about the gala series and watch the replays.

22StillSoMuchtoDo_MFRF

The 22nd Anniversary Sweetness and Laugher Gala took place on Facebook Live on Sunday, March 15, 2020.

whatsinyourgenes_taysachs

What: South Florida Genetic Testing and Education Fair

When: Wednesday, October 30, 2019, 10 AM – 2 PM

Where: Rick Case Arena at the Don Taft University Center

Why: Do you KNOW what’s in your genes?! We are proud to partner with Nova Southeastern University and JScreen to host a Genetic Screening event on Wednesday, October 30th from 10am to 2pm at the Rick Case Arena at the Don Taft University Center. Spread the word!!! #genetictesting

First 50 people to pre-register (with insurance) receive FREE screening. After that, screening is subsidized to $149 with insurance (usually an  $1100 test).

Over 200 diseases will be tested for; last year there was a 50% detection rate. (Don’t like blood tests? Test uses saliva!)

Past Screening & Testing Events

Past Galas

|| OUR STORIES ||

MFRF has celebrated

wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.

Evie

To lose her first child, Evie, ...
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Nicholas

Nicholas was unable to produce critical ...
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Mathew

Mathew was born to Kevin and ...
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Brooke

Brooke was born in 1996 with ...
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William

Back in 2014, the Marquardt family, ...
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Nicole

Nicole Friedland was born a long ...
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Eli

Eli was deeply loved and cared ...
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Cristian

Born a healthy and vibrant boy, ...
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Jordan

On September 17, 2019, after years ...
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Kevin Michael

Kevin Michael Vargas, born to Daniel ...
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Ready to make an impact?

MFRF has celebrated wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.

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