MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.
MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain
Save the Date!
Sweetness and Laughter Celebration
Sunday, March 5, 2023
starting at 6:00pm
The New Ballroom
Broken Sound Country Club
Boca Raton, Florida
Virtual 2022 "Sweetness and Laughter" Gala
- Sweetness and Laugher Entertainment:
- Bob Costas: 29 Emmy Award Winner will share his Wit and Wisdom
- Premier Virtual Magic Show according to over 100 major companies
- See the Light Awards and MFRF Progress Review
Curing the 2020 Bitterness and Sadness with
“Sweetness and Laughter”
Virtual Gala Mini-Series
Our first-ever virtual gala mini-series was a success! While we could not be physically together, to see more than 300 smiling faces and participants on Zoom this year was a wonderful alternative. We shared updates in research and treatments, genetic screening, nursing student education, and more! Click the link below to learn more about the gala series and watch the replays.
The 22nd Anniversary Sweetness and Laugher Gala took place on Facebook Live on Sunday, March 15, 2020.
What: South Florida Genetic Testing and Education Fair
When: Wednesday, October 30, 2019, 10 AM – 2 PM
Where: Rick Case Arena at the Don Taft University Center
Why: Do you KNOW what’s in your genes?! We are proud to partner with Nova Southeastern University and JScreen to host a Genetic Screening event on Wednesday, October 30th from 10am to 2pm at the Rick Case Arena at the Don Taft University Center. Spread the word!!! #genetictesting
First 50 people to pre-register (with insurance) receive FREE screening. After that, screening is subsidized to $149 with insurance (usually an $1100 test).
Over 200 diseases will be tested for; last year there was a 50% detection rate. (Don’t like blood tests? Test uses saliva!)
Past Screening & Testing Events
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MFRF has celebrated
wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.