Officers and Board of Directors
President, Mathew Forbes Romer Foundation
Past-President: National Tay-Sachs and Allied Diseases Association
Former Sr. Director, Business Development and Sales for Johnson Controls
Secretary / Treasurer, Mathew Forbes Romer Foundation
Sr. Product Manager for Motorola Solutions
VP Growth & Development
Former President, Corporate Media Communications, Inc., NYC; Former VP Broadcasting, National Hockey League & Services, NYC
Joan Deoul, Esq.
Retired global contracts attorney
Pablo Meles, Esq.
Pablo Meles P.A. Intellectual Property and Technology Law
Linda Meran. Esq.
Former Vice President of B’nai B’rith Women International
Corporate Marketing Manager ADT Security Services, Inc.
Edward M. Yorke, Esq.**
Former Managing Director Lazard, Ltd.
Member, Board of Trustees, Hospital for Special Surgeries, NY
Richard Gold, Emeritus
Executive Vice President, Promise Healthcare Corporation
Larry Lemanski, PhD, Emeritus
Provost and Vice President for Academic Affairs, Texas A&M University
Lois Siegel *, Emeritus
Medical / Scientific Advisory Board
Anne Boynkin, Ph.D.
Mislen Bauer, MD, FACMG
Director, Medical Genetics Miami Children’s Hospital
Anwar Vardag, MD
Neal Weinreb, MD
Director, University Research Foundation for Lysosomal storage Diseases
Marcella M. Rutherford, Ph.D., M.B.A., M.S.N., R.N
Dean of the Nova Southeastern University Ron and Kathy Assaf College of Nursing
Marlaine C. Smith, RN, Ph.D.,AHN-BC, FAAN
Dean of the Christine E. Lynn College of Nursing, Florida Atlantic University
R. Rodney Howell, MD, FAAP, FACMG
Emeritus professor and chairman of pediatrics
Emeritus member of the Hussman Institute for Human Genomics at the University of Miami Miller School of Medicine
Founding chair of the congressionally-mandated Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children
Richard Bennett, DO, FAPP
Partner, Pediatric Associates
Shane Palmer, MS, CGC
Stuart Horowitz, Ph.D.
CEO of Baron Delivery on Demand
Neil Eisenband, CPA
Director of Family Services, National Tay-Sachs and Allied Diseases
Fmr. Congressman Ron Klein, Esq.
Partner Holland & Knight Law Firm
Lisa Math B.S.,CRPS-F
Co-Director, Family S.T.A.R. & United Families for Children’s Mental Health Network Family Network on Disabilities
Rabbi Dan Levin
Senior Rabbi Temple Beth El of Boca Raton
Associate Product Manager (NFL) at Fanatics Inc.
Judy Levis Markhoff
Masters of Social Work and Youth Grief Counselor