Officers and Board of Directors

Kevin Romer*

President, Mathew Forbes Romer Foundation

Past-President: National Tay-Sachs and Allied Diseases Association

Former Sr. Director, Business Development and Sales for Johnson Controls


Lisajane Romer*

Secretary / Treasurer, Mathew Forbes Romer Foundation
Sr. Product Manager for Motorola Solutions

Carl Meyers**

VP Growth & Development
Former President, Corporate Media Communications, Inc., NYC; Former VP Broadcasting, National Hockey League & Services, NYC

Joan Deoul, Esq.

Retired global contracts attorney 

Pablo Meles, Esq.

Pablo Meles P.A. Intellectual Property and Technology Law

Linda Meran. Esq.

Carole Romer

Former Vice President of B’nai B’rith Women International

Allan Spiro

Corporate Marketing Manager ADT Security Services, Inc.

Edward M. Yorke, Esq.**

Former Managing Director Lazard, Ltd.

Member, Board of Trustees, Hospital for Special Surgeries, NY

Richard Gold, Emeritus

Executive Vice President, Promise Healthcare Corporation

Larry Lemanski, PhD, Emeritus

Provost and Vice President for Academic Affairs, Texas A&M University

Lois Siegel *, Emeritus

Medical / Scientific Advisory Board

Anne Boynkin, Ph.D.


Mislen Bauer, MD, FACMG

Director, Medical Genetics Miami Children’s Hospital

Anwar Vardag, MD


Neal Weinreb, MD

Director, University Research Foundation for Lysosomal storage Diseases

Marcella M. Rutherford, Ph.D., M.B.A., M.S.N., R.N

Dean of the Nova Southeastern University Ron and Kathy Assaf College of Nursing

Marlaine C. Smith, RN, Ph.D.,AHN-BC, FAAN

Dean of the Christine E. Lynn College of Nursing, Florida Atlantic University

R. Rodney Howell, MD, FAAP, FACMG

Emeritus professor and chairman of pediatrics
Emeritus member of the Hussman Institute for Human Genomics at the University of Miami Miller School of Medicine
Founding chair of the congressionally-mandated Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

Richard Bennett, DO, FAPP

Partner, Pediatric Associates

Shane Palmer, MS, CGC


Stuart Horowitz, Ph.D.


Advisory Board

Lori Baron

CEO of Baron Delivery on Demand

Neil Eisenband, CPA

Monica Gettleman

Director of Family Services, National Tay-Sachs and Allied Diseases

Dorie Grizzard*

Fmr. Congressman Ron Klein, Esq.

Partner Holland & Knight Law Firm

Lisa Math B.S.,CRPS-F

Co-Director, Family S.T.A.R. & United Families for Children’s Mental Health Network Family Network on Disabilities

Rabbi Dan Levin

Senior Rabbi Temple Beth El of Boca Raton

Jeff Romer

Associate Product Manager (NFL) at Fanatics Inc.

Judy Levis Markhoff

Oralea Marquardt

Masters of Social Work and Youth Grief Counselor

Honorary Board

Karen Bomber

Walter Collins

Cliff Marks

Roberta Meyers**

Richard Robbins, MD

Mindy Romer

Eileen Segal

Jamie Weinstein

Amy Brand

Chris Dardet

Eli Math

Jill Morgenstein

Ellie Robbins

William Romer**

Mike Siegel

Victoria Bronfman

Frank Friedland*

Harry Meran

Bob Nichols

Neal Roher, Esq.

Steve Rosner

Tara Siegel

Matt Cave

Shelley Friedland*

Ellen Meyers

Janet Oppenheimer

Alexis Romer

Eric Schiffer

Daniel Vargas*

*affected families