MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.
MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain
The Mathew Forbes Romer Foundation Inc Receives 2020 Best of Boca Raton Award
Boca Raton Award Program Honors the Achievement BOCA RATON ...
Read More MATHEW FORBES ROMER FOUNDATION CELEBRATES CONTINUED ADVANCES IN GENE THERAPY AND RENEWED URGENCY FOR CHILDREN WITH TAY-SACHS AND OTHER FATAL GENETIC DISEASES OF THE BRAIN
South Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala ...
Read More FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration 2019
Linda Meran and Carole Romer from the MFRF Board ...
Read More Axovant Orphan Drug Designation
AXOVANT GENE THERAPIES RECEIVES ORPHAN DRUG DESIGNATION FROM FDA ...
Read More Ron and Kathy Assaf College of Nursing Teams Up With the Mathew Forbes Romer Foundation
Ron and Kathy Assaf College of nursing students were ...
Read More AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION
AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION IN TAY-SACHS ...
Read More The Mathew Forbes Romer Foundation Raises Over $90,000 at Gala and Continues Advancements in Gene Therapy into Clinical Trials
S. Florida-Based Organization and Its Supporters Honor
Those Who ...
Read More Mathew Forbes Romer Foundation Celebrates New Breakthrough in Gene Therapy Treatment for Tay-Sachs & Other Children’s Genetic Diseases
S. Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala ...
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MFRF has celebrated
wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.