MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.
MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain
MATHEW FORBES ROMER FOUNDATION CELEBRATES CONTINUED ADVANCES IN GENE THERAPY AND RENEWED URGENCY FOR CHILDREN WITH TAY-SACHS AND OTHER FATAL GENETIC DISEASES OF THE BRAIN
The Mathew Forbes Romer Foundation Raises Over $90,000 at Gala and Continues Advancements in Gene Therapy into Clinical Trials
Mathew Forbes Romer Foundation Celebrates New Breakthrough in Gene Therapy Treatment for Tay-Sachs & Other Children’s Genetic Diseases
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MFRF has celebrated
wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.