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FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration 2019

Linda Meran and Carole Romer from the MFRF Board had the pleasure of representing the Foundation at the FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration. The beautiful Donor Wall was  revealed after several presentations, including those by FIU President Dr. Marc Rosenberg and  Dean Ora Strickland. We …

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Axovant Orphan Drug Designation

AXOVANT GENE THERAPIES RECEIVES ORPHAN DRUG DESIGNATION FROM FDA FOR AXO-AAV-GM1 FOR THE TREATMENT OF GM1 GANGLIOSIDOSIS NEW YORK and BASEL, Switzerland, Nov. 18, 2019 (GLOBE NEWSWIRE) — Axovant Gene Therapies Ltd. (NASDAQ: AXGT), a clinical-stage company developing innovative gene therapies, today announced that the U.S. Food and Drug Administration (FDA) has granted orphan drug …

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Ron and Kathy Assaf College of Nursing Teams Up With the Mathew Forbes Romer Foundation

Ron and Kathy Assaf College of nursing students were pleased to receive another impactful visit from the Mathew Forbes Romer Foundation. Among several of its contributions within Nova Southeastern University, the Romer Foundation funds nursing scholarships, helps to create simulation scenarios for in-home family care, and continues to host lecture series and genetic testing during …

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AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION

AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION IN TAY-SACHS DISEASE AT THE EUROPEAN SOCIETY OF GENE AND CELL THERAPY 27TH ANNUAL CONGRESS Initial data with AXO-AAV-GM2 suggests stabilization of disease course, attainment of normal developmental milestones, and improvement in myelination on brain MRI AXO-AAV-GM2 generally safe and well-tolerated to date Additional data to be presented …

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The Mathew Forbes Romer Foundation Raises Over $90,000 at Gala and Continues Advancements in Gene Therapy into Clinical Trials

S. Florida-Based Organization and Its Supporters Honor 
Those Who Have Helped Drive Therapy Breakthroughs Together Boca Raton, FL, April 16, 2019 –The Mathew Forbes Romer Foundation (MFRF), a non-profit organization dedicated to the education and research of children’s genetic diseases of the brain, marked its 21st year with a celebration of Gene Therapy, which included …

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Mathew Forbes Romer Foundation Celebrates New Breakthrough in Gene Therapy Treatment for Tay-Sachs & Other Children’s Genetic Diseases

S. Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala & “See the Light” Awards Ceremony March 16th in Delray Beach Boca Raton, FL, January 31, 2019 – Twenty-one years after The Mathew Forbes Romer Foundation (MFRF), a non-profit organization dedicated to the education and research of children’s genetic diseases of the brain, was founded – …

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Blu Genes Foundation gives UMMS $1.4M to bring Tay-Sachs gene therapy clinical trial

The Blu Genes Foundation, a Toronto-based foundation dedicated to the development of gene therapy treatments for rare disease, has donated $1.4 million to UMass Medical School for the advancement of a Phase I/II clinical trial for the genetic disorder Tay-Sachs. The gift from the Blu Genes Foundation will be a catalyst in moving research from the …

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20th Anniversary Genetic Testing and Education Events Throughout Florida

In line with The Mathew Forbes Romer Foundation’s (MFRF) ongoing mission to increase awareness of fatal genetic diseases and the importance of testing, we are thrilled to partner with JScreen. As part of the MFRF 20th Anniversary celebration, we have successfully conducted and underwritten screenings at Nova Southeastern University, the University of Florida, and Florida …

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THE MATHEW FORBES ROMER FOUNDATION CELEBRATES 20 YEARS; 
HOSTS ANNUAL “SWEETNESS AND LAUGHTER” GALA & 
“SEE THE LIGHT” AWARDS CEREMONY IN RECOGNITION

March 10th Kravis Center High-Tech Magic Extravaganza Features “The Illusionists –Live from Broadway”; See the Light Awards Will Highlight Past Honorees for Scientific and Community Leadership Boca Raton, FL, January 16, 2018 – The Mathew Forbes Romer Foundation (MFRF), a non-profit organization dedicated to the education and research of children’s genetic diseases of the brain, …

THE MATHEW FORBES ROMER FOUNDATION CELEBRATES 20 YEARS; 
HOSTS ANNUAL “SWEETNESS AND LAUGHTER” GALA & 
“SEE THE LIGHT” AWARDS CEREMONY IN RECOGNITION Read More »

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