Nicole Friedland was born a long time ago in a place very far away. 1980 in Johannesburg, South Africa… When she died 19 months later, her parents had never heard of Tay-Sachs nor realized their family was at risk.
Nicole’s parents Frank and Shelly spent all of their spare time looking for treatments and visiting Obstetricians and Gynecologists to educate them about the disease. The Frieldand family brought this same determination and awareness to the United States where they combined with the Mathew Forbes Romer Foundation to deliver education and testing programs to South Florida, while raising awareness for the medical community. To this day, they are aggressively exploring and supporting the most promising potential treatments.