{"id":8448,"date":"2023-11-13T13:56:21","date_gmt":"2023-11-13T13:56:21","guid":{"rendered":"https:\/\/mfrfoundation.org\/?page_id=8448"},"modified":"2023-11-13T14:44:44","modified_gmt":"2023-11-13T14:44:44","slug":"save-the-date-2024","status":"publish","type":"page","link":"https:\/\/mfrfoundation.org\/save-the-date-2024\/","title":{"rendered":"Save the date 2024"},"content":{"rendered":"\n\n\t\t\t\t<a href=\"https:\/\/mfrfoundation.org\/\" target=\"_blank\" rel=\"noopener\" itemprop=\"url\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/unnamed-4.png\" alt=\"unnamed (4)\" itemprop=\"image\" height=\"322\" width=\"1200\" title=\"unnamed (4)\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<\/a>\n<h2>\n\t\tUPDATE AND SAVE THE DATE\n\t<\/h2>\n<h2>\n\t\tDear Friends of the Mathew Forbes Romer Foundation (MFRF),\n\t<\/h2>\n\t<p>We hope everyone is doing well although we are certainly dealing with unprecedented times. We wanted to provide you an update on the continued progress of MFRF while letting you know that\u00a0Sunday, February 25, 2024 will be the next &#8220;Sweetness and Laughter&#8221; Celebration in Boca Raton, Florida starting at 11:30 a.m.\u00a0See below for more details.<\/p>\n<h2>\n\t\tTHE YEAR IN REVIEW\n\t<\/h2>\n<h2>\n\t\tTHE 25TH Anniversary Gala. :\n\t<\/h2>\n\t<p>We are excited to share with you the success of Mathew Forbes Romer Foundation&#8217;s 25th Annual Gala held on Sunday, March 5 at Broken Sound Country Club. Over 200 people attended and we raised record funds to support our mission.<\/p>\n\t<p><strong>Highlights of the\u00a0Gala\u00a0Program\u00a0included:<\/strong><\/p>\n<ul>\n<li>Our program and video were powerful tributes to the beautiful, inspiring children and families, and spanned our mission of Genetic Screening, Nursing Education, and Research of Treatments and Cures.<\/li>\n<li>Additionally, we were thrilled to recognize our many &#8220;See The Light&#8221; honorees. Past recipient Dr. Terry Flotte, of the UMass College of Medicine, provided important updates on the gene therapy clinical trials. Our newest honoree Karen Grinzaid and JScreen showcased the 10-year partnership with MFRF for Genetic Screening.<\/li>\n<\/ul>\n<h2>\n\t\t<a href=\"https:\/\/youtu.be\/fmDWhKuZ578\" title=\"Click here to enjoy the video presentation\" target=\"_blank\" rel=\"noopener\">\n\t\tClick here to enjoy the video presentation\n\t\t<\/a>\n\t<\/h2>\n<h2>\n\t\t<a href=\"https:\/\/sacklunchagency.com\/MFRF\/\" title=\"Click here to enjoy the digital program from the event\" target=\"_blank\" rel=\"noopener\">\n\t\tClick here to enjoy the digital program from the event\n\t\t<\/a>\n\t<\/h2>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.06.59\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.06.59\u202fAM\" itemprop=\"image\" height=\"1214\" width=\"3020\" title=\"Screenshot 2023-11-13 at 9.06.59\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n<h2>\n\t\tRESEARCH AND TREATMENTS:\n\t<\/h2>\n\t<ul>\n<li>Our special partnership with the\u00a0University of Massachusetts Chan Medical School\u00a0and our partnership with\u00a0National Tay-Sachs and Allied Diseases Association (NTSAD) ,\u00a0has made the impossible, possible! Last year we shared that the company that was licensing the Gene Therapy Technology in clinical trials, ended its investment due to financial problems. Under the leadership of\u00a0Dean Terry Flotte, and great team work with the MFRF and NTSAD networks, we are executing an ambitious plan to complete the dose escalation clinical trial Phase 1\/2 protocol dosing the final three children through the highest dose level.<\/li>\n<\/ul>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.11.17\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.11.17\u202fAM\" itemprop=\"image\" height=\"910\" width=\"2418\" title=\"Screenshot 2023-11-13 at 9.11.17\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n<h2>\n\t\tGENETIC AND NEWBORN SCREENING:\n\t<\/h2>\n\t<ul>\n<li>With the same urgency we have for developing treatments, MFRF is driving initiatives to detect at-risk families and affected children through pre-conception carrier and newborn screening (NBS) programs.<\/li>\n<li>As part of the ongoing celebration of the 10-Year partnership with\u00a0JScreen\u00a0we continue to fund and promote carrier screening programs across South Florida and during the annual NTSAD Family conference.\u00a0<strong>JScreen<\/strong> recently shared our story in South Florida and in medical media including the\u00a0Miami New Times,\u00a0The Hollywood Times, and\u00a0<strong><a href=\"https:\/\/www.mmm-online.com\/home\/channel\/campaigns\/jscreen-raises-awareness-about-testing-for-tay-sachs-disease\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.mmm-online.com\/home\/channel\/campaigns\/jscreen-raises-awareness-about-testing-for-tay-sachs-disease\/&amp;source=gmail&amp;ust=1699970070246000&amp;usg=AOvVaw039Pd9rylmoSSDCnkW0uUd\">Medical Marketing and Media: &#8220;JScreen raises awareness about testing for Tay-Sachs disease<\/a>&#8220;.<\/strong><\/li>\n<li>MFRF President Kevin Romer was invited to present the NTSAD Research Day Plenary Session update on the Newborn Screening Consortium that MFRF helped to create including the completion of Dried Blood Spot Testing Assays for Tay-Sachs and Canavan diseases.<\/li>\n<\/ul>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/unnamed-6.png\" alt=\"unnamed (6)\" itemprop=\"image\" height=\"1018\" width=\"1200\" title=\"unnamed (6)\" onerror=\"this.style.display='none'\"  \/>\n<h2>\n\t\tNURSING EDUCATION:\n\t<\/h2>\n\t<ul>\n<li>MFRF loves working with nursing students to help prepare them to care for our children&#8217;s special needs! Programs include scholarships, seminars, and designing and implementing simulation programs.<\/li>\n<li>In celebration of its 25th anniversary, MFRF increased its support for scholarships with\u00a0<strong>Nova Southeastern University, Florida International University, and Florida Atlantic University.<\/strong><\/li>\n<li>After three years of MFRF&#8217;s team of experts conducting interactive virtual seminars, we conducted our first in-person session at the NSU main campus while simulcasting to two other campuses. We invited our JScreen partners to join us with a carrier screening program for the students!<\/li>\n<\/ul>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.17.42\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.17.42\u202fAM\" itemprop=\"image\" height=\"628\" width=\"3044\" title=\"Screenshot 2023-11-13 at 9.17.42\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n<h2>\n\t\tNEW LEADERSHIP:\n\t<\/h2>\n\t<ul>\n<li>Established the role of &#8220;Vice President of Community Outreach&#8221; recognizing Linda Meran&#8217;s dedication and achievements over the years.<\/li>\n<li>Created a &#8220;Next Gen&#8221; Board to address succession planning and to develop our future leaders.<\/li>\n<\/ul>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.19.08\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.19.08\u202fAM\" itemprop=\"image\" height=\"740\" width=\"636\" title=\"Screenshot 2023-11-13 at 9.19.08\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n<h2>\n\t\tSave the Date  for our  2024 Sweetness and Laughter Celebration!!!\n\t<\/h2>\n<h2>\n\t\tON\n\t<\/h2>\n<h2>\n\t\tSunday, February 25, 2024  starting at 11:30 a.m.\n\t<\/h2>\n<h2>\n\t\tAT\n\t<\/h2>\n<h2>\n\t\tThe Boca Raton Marriott  Boca Raton, Florida\n\t<\/h2>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.22.14\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.22.14\u202fAM\" itemprop=\"image\" height=\"372\" width=\"362\" title=\"Screenshot 2023-11-13 at 9.22.14\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.22.21\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.22.21\u202fAM\" itemprop=\"image\" height=\"898\" width=\"1344\" title=\"Screenshot 2023-11-13 at 9.22.21\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n<h2>\n\t\tINVITATIONS WILL BE MAILED OUT IN THE COMING MONTHS\n\t<\/h2>\n<h2>\n\t\tIf you have moved in the last year, please send your new mailing address to info@mfrfoundation.org\n\t<\/h2>\n\t<p>Please continue to check our website www.mfrfoundation.org for more information on sponsorships and tickets.<\/p>\n<strong>Linda Meran<\/strong><br \/>\nGala Co-Chair<br \/>\n<strong>Allan Spiro<\/strong><br \/>\nGala Co-Chair\n<p>Our sincerest thanks and love!<\/p>\n<strong>Lisajane &amp; Kevin<\/strong><br \/>\nLisajane &amp; Kevin Romer<br \/>\nCo-Founders\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.30.52\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.30.52\u202fAM\" itemprop=\"image\" height=\"744\" width=\"742\" title=\"Screenshot 2023-11-13 at 9.30.52\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mfrfoundation.org\/wp-content\/uploads\/2023\/11\/Screenshot-2023-11-13-at-9.31.05\u202fAM.png\" alt=\"Screenshot 2023-11-13 at 9.31.05\u202fAM\" itemprop=\"image\" height=\"112\" width=\"2024\" title=\"Screenshot 2023-11-13 at 9.31.05\u202fAM\" onerror=\"this.style.display='none'\"  \/>\n\t<p>For up-to-date\u00a0news, please visit us at\u00a0<a href=\"https:\/\/www.mfrfoundation.org\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.mfrfoundation.org&amp;source=gmail&amp;ust=1699970070247000&amp;usg=AOvVaw28GreVN2R2tfOH7wUnTUb7\">MFRFoundation.org<\/a><\/p>\n\n","protected":false},"excerpt":{"rendered":"<p>UPDATE AND SAVE THE DATE Dear Friends of the Mathew Forbes Romer Foundation (MFRF), We hope everyone is doing well although we are certainly dealing with unprecedented times. We wanted to provide you an update on the continued progress of MFRF while letting you know that\u00a0Sunday, February 25, 2024 will be the next &#8220;Sweetness and [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"disabled","ast-main-header-display":"disabled","ast-hfb-above-header-display":"disabled","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"disabled","site-post-title":"disabled","ast-breadcrumbs-content":"disabled","ast-featured-img":"disabled","footer-sml-layout":"disabled","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"footnotes":""},"_links":{"self":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/8448"}],"collection":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/comments?post=8448"}],"version-history":[{"count":8,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/8448\/revisions"}],"predecessor-version":[{"id":8467,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/8448\/revisions\/8467"}],"wp:attachment":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/media?parent=8448"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}