{"id":8135,"date":"2022-10-24T20:37:39","date_gmt":"2022-10-24T20:37:39","guid":{"rendered":"https:\/\/mfrfoundation.org\/?page_id=8135"},"modified":"2024-04-10T17:13:29","modified_gmt":"2024-04-10T17:13:29","slug":"home-copy","status":"publish","type":"page","link":"https:\/\/mfrfoundation.org\/","title":{"rendered":"Copy of Home"},"content":{"rendered":"\n\n\t\t\t\"\"\t\t\t\n\t\t\t\t

<\/p>\nSweetness and Laughter<\/strong>
\nCelebration<\/strong>
\nSunday, February 25, 2024<\/strong>\n\t\t\t\n\t\t\t\t\t\t\tCLICK HERE FOR RECAP\n\t\t\t\t\t<\/a>\n\t\t\t\"\"\t\t\t\n\t\t\t\t

WHAT’S NEW<\/h1>

Learn about all the new studies, events, and outreach programs we do to help support you!<\/p>\n\t\t\t\n\t\t\t\t\t\t\tLearn More\n\t\t\t\t\t<\/a>\n\t\t\t\"\"\t\t\t\n\t\t\t\t

GET EDUCATED!<\/h1>

We strive to fund better education & research of Children’s Genetic Diseases of the Brain<\/p>\n\t\t\t\n\t\t\t\t\t\t\tSee Our Accomplishments\n\t\t\t\t\t<\/a>\n\t\t\t\t\n<\/a>\n\t\t\t\t\n<\/a>\n\t

MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.<\/p>\n

MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain<\/p>\n\t\t\t\t\"Mathew_6mos\"\n\t

|| OUR MISSION ||<\/p>\n

\n\t\tThe Mathew Forbes Romer Foundation’s\n\t<\/h2>\n\t

Mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children’s genetic diseases of the brain.<\/p>\n\t\t\t\n\t\t\t\t\t\tlearn more\n\t\t\t\t\t<\/a>\n\t\t\t\n\t\t\t\t\t\tDONATE TODAY!\n\t\t\t\t\t<\/a>\n\t

|| LEARN MORE ||<\/p>\n

\n\t\tDID YOU KNOW?\n\t<\/h2>\n\t\t\t

The condition is recessive.<\/h3>

Both parents must carry the gene to have a Tay-Sach’s Child.<\/strong><\/p>\t\t\n\t\t\t

High quality genetic counseling & testing<\/h3>

for many genetic diseases are available and critical for both potential parents.
<\/strong><\/p>\t\t\n\t\t\t

Tay-Sachs is 1 in 40 related fatal genetic diseases<\/h3>

Where waste products destroy cell function
<\/strong><\/p>\t\t\n\t\t\t

High risk groups for Tay-Sachs Disease ( occurrence of gene )\u00a0 include:<\/h3>

Ashkenazi \/ Eastern European Jewish ( 1 in 27 )\u00a0 | <\/strong>Irish American ( 1 in 50-91)\u00a0 | <\/strong>French Canadian ( 1 in 30 ) | <\/strong>Cajun ( 1 in 30 )
<\/strong><\/p>\t\t\n\t\t\t

The occurrence of the Tay-Sachs gene in the rest of the population is<\/h3>

1 in 250, NOT ZERO<\/strong><\/p>\t\t\n\t

|| OUR STORIES ||<\/p>\n

\n\t\tMFRF has celebrated\n\t<\/h2>\n\t

wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.<\/p>\n\t\t\t\n\t\t\t\t\t\tMAKE A DIFFERENCE TODAY!\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tEvie<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tTo lose her first child, Evie, …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tNicholas<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tNicholas was unable to produce critical …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tMathew<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tMathew was born to Kevin and …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tBrooke<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tBrooke was born in 1996 with …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tWilliam<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tBack in 2014, the Marquardt family, …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tNicole<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tNicole Friedland was born a long …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tEli<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tEli was deeply loved and cared …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tCristian<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tBorn a healthy and vibrant boy, …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tJordan<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tOn September 17, 2019, after years …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tKevin Michael<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tKevin Michael Vargas, born to Daniel …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t

Ready to make an impact?<\/h3>\n\t\t

MFRF has celebrated wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.<\/p>\n\t\t\t\n\t\t\t\t\t\tDONATE TODAY!\n\t\t\t\t\t<\/a>\n\n","protected":false},"excerpt":{"rendered":"

Sweetness and Laughter Celebration Sunday, February 25, 2024 CLICK HERE FOR RECAP WHAT’S NEW Learn about all the new studies, events, and outreach programs we do to help support you! Learn More GET EDUCATED! We strive to fund better education & research of Children’s Genetic Diseases of the Brain See Our Accomplishments MFRF has provided […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"footnotes":""},"_links":{"self":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/8135"}],"collection":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/comments?post=8135"}],"version-history":[{"count":23,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/8135\/revisions"}],"predecessor-version":[{"id":8705,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/8135\/revisions\/8705"}],"wp:attachment":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/media?parent=8135"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}