{"id":149,"date":"2021-12-13T15:21:04","date_gmt":"2021-12-13T15:21:04","guid":{"rendered":"https:\/\/mfrfoundation.org\/?page_id=149"},"modified":"2023-12-20T18:47:39","modified_gmt":"2023-12-20T18:47:39","slug":"stories","status":"publish","type":"page","link":"https:\/\/mfrfoundation.org\/stories\/","title":{"rendered":"Stories"},"content":{"rendered":"\n

\n\t\tSTORIES \/\/\n\t<\/h2>\n\t

Our Focus is Education & Research of Children’s Genetic Diseases of the Brain<\/p>\n\t\t\t\n\t\t\t\t\t\tMAKE A DIFFERENCE TODAY!\n\t\t\t\t\t<\/a>\n\t

MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.<\/p>\n

MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain<\/p>\n

\n\t\tFollowing are a few of the stories that have impacted us over the years, reminded us of the importance of the Foundation’s work and mission, and given us hope while often causing tears\n\t<\/h2>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tEvie<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tTo lose her first child, Evie, …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tNicholas<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tNicholas was unable to produce critical …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tMathew<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tMathew was born to Kevin and …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tBrooke<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tBrooke was born in 1996 with …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tWilliam<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tBack in 2014, the Marquardt family, …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tNicole<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tNicole Friedland was born a long …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tEli<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tEli was deeply loved and cared …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tCristian<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tBorn a healthy and vibrant boy, …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tJordan<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tOn September 17, 2019, after years …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\"\"\n\t\t\t\t<\/a>\n\t\t\t\t\t\t

\n\t\t\t\tKevin Michael<\/a>\t\t\t<\/h3>\n\t\t\t\t\t\t\t\tKevin Michael Vargas, born to Daniel …\n\t\t\t\t\tRead More →<\/a>\t\t\n\t\t

Ready to make an impact?<\/h3>\n\t\t

MFRF has celebrated wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.<\/p>\n\t\t\t\n\t\t\t\t\t\tDONATE TODAY!\n\t\t\t\t\t<\/a>\n\n","protected":false},"excerpt":{"rendered":"

STORIES \/\/ Our Focus is Education & Research of Children’s Genetic Diseases of the Brain MAKE A DIFFERENCE TODAY! MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"footnotes":""},"_links":{"self":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/149"}],"collection":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/comments?post=149"}],"version-history":[{"count":10,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/149\/revisions"}],"predecessor-version":[{"id":8549,"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/pages\/149\/revisions\/8549"}],"wp:attachment":[{"href":"https:\/\/mfrfoundation.org\/wp-json\/wp\/v2\/media?parent=149"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}