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A Beacon of Hope: Barry Byrne, M.D., Ph.D., receives “See The Light” Award from the Mathew Forbes Romer Foundation

Barry Byrne, M.D., Ph.D., receives “See The Light” Award from the Mathew Forbes Romer Foundation By: Tyler Francischine Oct. 15, 2020 — For families facing a devastating diagnosis of pediatric neurodegenerative genetic disease, Barry Byrne, M.D., Ph.D., provides a sense of hope and possibility. As director of the Powell Gene Therapy Center, the associate chair […]

A Beacon of Hope: Barry Byrne, M.D., Ph.D., receives “See The Light” Award from the Mathew Forbes Romer Foundation Read More »

The Mathew Forbes Romer Foundation Inc Receives 2020 Best of Boca Raton Award

Boca Raton Award Program Honors the Achievement BOCA RATON February 10, 2020 — The Mathew Forbes Romer Foundation Inc has been selected for the 2020 Best of Boca Raton Award in the Education & Research Foundation category by the Boca Raton Award Program. Each year, the Boca Raton Award Program identifies companies that we believe

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MATHEW FORBES ROMER FOUNDATION CELEBRATES CONTINUED ADVANCES IN 
GENE THERAPY AND RENEWED URGENCY FOR CHILDREN WITH TAY-SACHS 
AND OTHER FATAL GENETIC DISEASES OF THE BRAIN

South Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala & “See the Light” Awards Ceremony March 15th at the Broward Center for the Performing Arts Boca Raton, FL, Jan. 17, 2020 – Twenty-two years after The Mathew Forbes Romer Foundation, or MFRF, was founded, the South Florida nonprofit organization dedicated to education and research into

MATHEW FORBES ROMER FOUNDATION CELEBRATES CONTINUED ADVANCES IN 
GENE THERAPY AND RENEWED URGENCY FOR CHILDREN WITH TAY-SACHS 
AND OTHER FATAL GENETIC DISEASES OF THE BRAIN Read More »

FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration 2019

Linda Meran and Carole Romer from the MFRF Board had the pleasure of representing the Foundation at the FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration. The beautiful Donor Wall was  revealed after several presentations, including those by FIU President Dr. Marc Rosenberg and  Dean Ora Strickland. We

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Axovant Orphan Drug Designation

AXOVANT GENE THERAPIES RECEIVES ORPHAN DRUG DESIGNATION FROM FDA FOR AXO-AAV-GM1 FOR THE TREATMENT OF GM1 GANGLIOSIDOSIS NEW YORK and BASEL, Switzerland, Nov. 18, 2019 (GLOBE NEWSWIRE) — Axovant Gene Therapies Ltd. (NASDAQ: AXGT), a clinical-stage company developing innovative gene therapies, today announced that the U.S. Food and Drug Administration (FDA) has granted orphan drug

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Ron and Kathy Assaf College of Nursing Teams Up With the Mathew Forbes Romer Foundation

Ron and Kathy Assaf College of nursing students were pleased to receive another impactful visit from the Mathew Forbes Romer Foundation. Among several of its contributions within Nova Southeastern University, the Romer Foundation funds nursing scholarships, helps to create simulation scenarios for in-home family care, and continues to host lecture series and genetic testing during

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AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION

AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION IN TAY-SACHS DISEASE AT THE EUROPEAN SOCIETY OF GENE AND CELL THERAPY 27TH ANNUAL CONGRESS Initial data with AXO-AAV-GM2 suggests stabilization of disease course, attainment of normal developmental milestones, and improvement in myelination on brain MRI AXO-AAV-GM2 generally safe and well-tolerated to date Additional data to be presented

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The Mathew Forbes Romer Foundation Raises Over $90,000 at Gala and Continues Advancements in Gene Therapy into Clinical Trials

S. Florida-Based Organization and Its Supporters Honor 
Those Who Have Helped Drive Therapy Breakthroughs Together Boca Raton, FL, April 16, 2019 –The Mathew Forbes Romer Foundation (MFRF), a non-profit organization dedicated to the education and research of children’s genetic diseases of the brain, marked its 21st year with a celebration of Gene Therapy, which included

The Mathew Forbes Romer Foundation Raises Over $90,000 at Gala and Continues Advancements in Gene Therapy into Clinical Trials Read More »

Mathew Forbes Romer Foundation Celebrates New Breakthrough in Gene Therapy Treatment for Tay-Sachs & Other Children’s Genetic Diseases

S. Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala & “See the Light” Awards Ceremony March 16th in Delray Beach Boca Raton, FL, January 31, 2019 – Twenty-one years after The Mathew Forbes Romer Foundation (MFRF), a non-profit organization dedicated to the education and research of children’s genetic diseases of the brain, was founded –

Mathew Forbes Romer Foundation Celebrates New Breakthrough in Gene Therapy Treatment for Tay-Sachs & Other Children’s Genetic Diseases Read More »

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