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The Mathew
Forbes Romer
Foundation, Inc.
is an IRS
designated
nonprofit,
tax-exempt
organization
under Section
501(c)(3) of
the Internal
Revenue Code

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Florida Atlantic University
Center for Rare and Genetic Neurological Diseases & Nursing

Genzyme Corporation
Genzyme Genetics (Testing and Counseling) & Genzyme Therapeutics

Jewish Genetic Disease Consortium
Jewish Genetic Disease Consortium

Lysosomal Storage Disease Consortium
Lysosomal Storage Disease Consortium

Miami Children's Hospital Brain Institute
Neurogenetics & Lysosomal Storage Diseases

National Organization of Rare Disorders (NORD)
National Organization of Rare Disorders (NORD)

National Tay-Sachs & Allied Diseases Association (NTSAD)
About Tay-Sachs Disease, Canavan Disease, Family Services, Quality Control, Testing, Research Initiative

Scripps Research Institute
Scripps Research Institute

Tenet South Florida HealthSystems
Tenet South Florida HealthSystems

University of Miami
Center for Medical Genetics



The Mathew Forbes Romer Foundation's mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children's genetic diseases of the brain




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