Home

Our Stories

News

Leadership

Research + Education

Alliance + links

Contact Us

What's Happening

Donate Online

The Mathew
Forbes Romer
Foundation, Inc.
is an IRS
designated
nonprofit,
tax-exempt
organization
under Section
501(c)(3) of
the Internal
Revenue Code

site designed by
Cave Images
a full service
strategic design
+ branding firm










 

Research + Education

2006 Accomplishments

Testing and Education

  • The Fourth Annual South Florida Genetic Testing and Education Fair. In four years, almost 400 people from all backgrounds have received free testing resulting in an unanticipated detection rate of more than 20% for at least one of six fatal children's diseases (Tay-Sachs, Canavan, Cystic Fibrosis, Familial Dysautonmia, Gaucher's, Niemann-Pick)
  • Platinum Sponsor with Scripps Florida of the Inaugural Florida Biosciences Career & Education Expo including an educational curriculum and DVD, classroom presentations at area high schools and a new internship program.
  • Seventh Pediatric and Genetic Nursing Scholarship awarded. These scholarships have assisted four South Florida Colleges including Florida Atlantic Univeristy, Florida International University, and Nova Southeastern University.
  • A Joint Pediatric Genetics Residency & Fellowship - a unique collaboration between the University of Miami's Medical Genetics Center and Miami Children's Hospital Brain Institute and Clinical Genetics.
Research
  • The National Research Initiative, co-founded by the Mathew Forbes Romer Foundation, continued to reach new milestones:
  • Exceeded $700,000 in funding from our network with the National Tay-Sachs and Allied Diseases Association (NTSAD) leading to an additional $2 million in federal funding.
  • More than 40 scientific and medical experts worldwide united for a major National Institutes of Health (NIH) workshop to study brain function, malfunction and potential therapies.
  • A Research Roadmap was established for programs across Basic Research, Proof of Science, Animal Trials, Clinical Trials, and Commercial Availability.
  • 13 of the 26 programs are moving toward Clinical Trials and Commercial Availability





The Mathew Forbes Romer Foundation's mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children's genetic diseases of the brain




Did you know?