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The Mathew
Forbes Romer
Foundation, Inc.
is an IRS
under Section
501(c)(3) of
the Internal
Revenue Code

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Research + Education

2005 Accomplishments

  • Joint Pediatric Genetics Residency/Fellowship combining the University of Miami's Medical Genetics Center with Miami Children's Hospital clinical experience and patient population.
  • The Third Annual South Florida Genetic Testing and Education Fair, which tested a record number of people in the Tri-County area. In the three years of testing, over 300 people from all backgrounds have resulted in an extraordinary 20% detection rate for at least one of six children's fatal genetic diseases.
  • The MFRF Neurogenetics Data Registry to track clinical research patients at Miami Children's Hospital Brain Institute.
  • The State Center for Rare and Genetic Neurological Diseases (CRGND) in cooperation with Florida Atlantic University.
  • Further advancement of the National Tay-Sachs and Allied Diseases Association (NRSAD) Research Initiative. Exceeding $500,000 of funding by the network organizations plus over $1 million of federal funding with promising progress with Gene Therapy, Stem Cells, Small Molecules, Diagnostics and Drug Exploration.
  • Ongoing Sponsorship of the NTSAD Annual Medical and Scientific Workshop, specifically for families, scientists and medical professionals.
  • Pediatric and Genetic Nursing Scholarships at Florida International University, Nova Southeastern University and Florida Atlantic University.

The Mathew Forbes Romer Foundation's mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children's genetic diseases of the brain

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