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The Mathew
Forbes Romer
Foundation, Inc.
is an IRS
under Section
501(c)(3) of
the Internal
Revenue Code

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Research + Education

2004 Accomplishments

  • Health & Wellness Expo Exhibitor (held by the Levis Jewish Community Center and West Boca Medical Center) for the fourth year, continuing education efforts in Palm Beach County, Florida.
  • First-ever 5K Pick up the Pace Run/Walk for a Future Free of Genetic Neurological Diseases took place April 25, 2004 to increase awareness of these diseases. Almost 200 people participated in this event raising over $35,000. The event was a collaborative effort between the Mathew Forbes Romer Foundation and the National Tay-Sachs & Allied Diseases Association.
  • The first NTSAD National Conference held in South Florida, featuring the Research and Medical Session, co-hosted and sponsored by the Mathew Forbes Romer Foundation. With Florida Atlantic University (FAU), with connections to Scripps Research Institute established the State Center for Rare and Genetic Neurological Diseases (CRGND) fostering collaboration dedicated to studying children's genetic diseases, Schools of Nursing at FAU, Florida International University, Nova Southeastern University and Miami-Dade Community College, for pediatric nursing scholarships funded with a focus on caring for children's genetic disorders.
  • Funding provided to Miami Children's Hospital, for the integration of it's Children's Brain Institute and Genetics Department to establish a world-class Neurogenetics Center.
  • Provided seed funding for the University of Miami "Gene Cure" genetics testing program. Continued chair of and funding for the National Tay-Sachs and Allied Diseases (NTSAD) Research Initiative to convert laboratory findings into practical therapies.

The Mathew Forbes Romer Foundation's mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children's genetic diseases of the brain

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