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The Mathew
Forbes Romer
Foundation, Inc.
is an IRS
designated
nonprofit,
tax-exempt
organization
under Section
501(c)(3) of
the Internal
Revenue Code

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Research + Education

2003 Accomplishments

  • Pioneered the historic South Florida Genetic Testing Fair which provided education and testing to 90 people for a variety of genetic diseases. Teamed with Genzyme Therapeutics and Genetics, Ruth Rales Jewish Family Services, and West Boca Medical Center.
  • Sponsored nursing scholarships through Florida Atlantic University to promote concentrations on pediatrics and genetics.
  • Supported the successful National Rare Diseases Act Legislation, doubling federal funding for research and development, through continued work with Congressman Mark Foley of Florida.
  • Health & Wellness Expo Exhibitor (held by the Levis Jewish Community Center and West Boca Medical Center) for the third year continuing education efforts in Palm Beach County, Florida.
  • Chairs and co-funds NTSAD Research Initiative, raising over $300,000 and issuing six grants to major research institutions to investigate a variety of potential therapies including stem cells, gene therapy, substrate inhibitors and anti-inflammatories. Link to www.ntsad.com for more details.





The Mathew Forbes Romer Foundation's mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children's genetic diseases of the brain




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